Bathing and wounds treatment of Epidermolysis bullosa

Two people are required to carry out the treatment as the child may  struggle and one person should be on hand to attract his attention, or  to talk or play with him. It is better for everyone involved if the  treatment is as stress-free as possible.

Undress the child and remove the dressings that come off easily.

Those that stick to the skin can be removed in the bath. Proceed gently, playing with and talking to the child to reassure him and watch his reactions in the bath, which should last for 10 to 15 minutes.

Each wound must then be inspected for signs of infection or anomalous scarring which might need medical attention (delayed or excessive scarring). The whole body must be examined carefully to locate new blisters and assess how many there are. Crusts should be delicately removed or moistened with Vaseline.

The blisters must then be pierced and drained, otherwise they will continue to expand and the wound will take longer to heal. Antibiotic cream must only be used if there is obvious infection; prolonged usage risks making the bacteria resistant and can also cause potential allergy. Moisturising cream can be applied to the healthy skin.